Advocacy in Action

Advocacy in Action

Welcome to the UMDF'S Advocacy Action Center

Your voice is critical when it comes to educating Members of Congress about the needs of the patient community.  Please check back periodically for updated UMDF 'Legislative Action Items' that require your attention.   Remember, voices in numbers get things done -- so after you participate, please share with friends and family and ask them lend their voices, too! 

Please scroll down to see all current Action Items that need your support.

Congressional Mitochondrial Disease Caucus

The support of a robust Congressional Mitochondrial Disease Caucus will provide a forum for members of Congress and their staff to learn about mitochondrial disease and related issues including prevalence, the relationship to other illnesses, and current directions of research.  The Caucus will also provide support for the efforts of agencies such as the National Institutes of Health (NIH) and the Department of Defense (DoD) to support cutting edge research into mitochondrial disease to develop therapies and cures for specific diseases and new insights into many major neurological disorders.
Our bi-partisan Congressional Mitochondrial Disease Caucus is chaired by Rep. Jim McGovern (D-MA) and Rep. Brian Fitzpatrick (R-PA).
Click here to ask your Member of Congress to join the caucus today. >>